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Valerie Slade's avatar

Yes, your article is spot on and should be shared with all health professionals as well. I am one of those who has an awareness of my body (and yes, I use wearables too) but was dismissed by two doctors when I shared my symptoms after a combined 4-5 hr surgery of a complete hysterectomy + cystocele and rectocele repair + appendectomy (due to an incidental finding of an appendicolith during a routine colonoscopy). Day 4 post surgery I began experiencing intense pain + belly distention beginning mid-day and worsening during the evening so I went back to both doctors who performed surgeries (urogyn and general surgeon ) and was told this was normal because I had "so much work done down there." I also have a high tolerance for pain and told the doctors this so they would understand I am not one to complain unnecessarily. This continued for almost a week despite my pictures sent via MyChart showing my very distended belly each evening and describing the intense pain. After my 3rd visit complaining of pain and distention on Day 9 post op and being dismissed yet again, I requested a CT Scan (at 3am via MyChart during another sleepless night) where it was discovered I had a bowel obstruction due to the stitches adhering to the scar tissue from surgery. This required emergency surgery less than 24 hrs after my last doctor's visit. Thankfully a resection was not required nor had necrosis and sepsis set in yet (all outcomes I was warned about before being wheeled into surgery). I was healthy before the surgery and had been forcing myself to do frequent small walks each day to help relieve some of the pain which may have made me appear "too healthy" to have a bowel obstruction. The lesson for me is to be more demanding when I know something is wrong (3 post op visits + multiple MyChart messages and pictures apparently weren't enough??) and the lesson for doctors is to to err on the side of caution and order testing to rule out possible issues.

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Kendall v Mead's avatar

I struggled with getting diagnosed with Endometriosis for more than 10 years and during that time my anxiety being increasingly overloaded when bringing concerns up to a doctor because everything was always brushed to the side or I was told it was all in my head and to try things like meditation. Even though I learned to advocate for myself through this process I still deal with anxiety about going to the doctors whenever something is wrong.

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